If you're here, you have likely just been handed the news that your newborn or expected baby has sacral agenesis / caudal regression syndrome. Have hope! As you will learn from our website and our people, life with SA/CRS can be as happy and fulfilling as any life. To be sure, there will be challenges; we hope that we can help you navigate those challenges to achieve the best outcome of your child. And just as surely, there will be triumphs and joy; we hope you share those with us so we can all rejoice in another successful life with SA/CRS.
The first thing you should do is reach out to us. Contact us, and one of our members will get in touch and begin the process of support and networking.
Also, have a look around our site here and learn everything you can. Knowledge is your best ally in the road ahead. An especially helpful article has been written by our president, Jessica Rogers, a young woman with SA/CRS. Be sure to read it: Dear Parents of Children with SA/CRS.
Lastly, put that knowledge to work. Advocate for your child. Many doctors are not up to date on the latest treatment options for SA/CRS. If you learn something here that contradicts what your doctors are telling you, speak out. Don't let your doctors' degrees scare you. Send them to our site and hopefully, step by step, we can get our word out to the medical community.
We are so glad you've found us! Let us work together for the success of your child!